Shaking things up

Our sleeping beauty shortly after discharge from the hospital.

It's been a while since we updated... sorry about that. It's easy to get in the day-to-day grind and let things slip.

We are still doing tube feedings ever 3 hours and are getting used to taking turns being up at night. It's almost like she's a newborn all over again.
Quinn is gaining weight like crazy! She's up to 13 lbs 4 oz. - that's about a 2 lb gain over 2 months. She's got little fat rolls on her arms and legs and her chubby cheeks are precious.

We're sure every parent thinks their baby is the cutest... but Quinn really is the cutest.

Our chubby cheeked chipmunk in her car seat, last week. 

Grandma T was here for a month and watched Quinn while we were at work and now Grandma H is watching her during the day. We are so grateful for these brave ladies who have really stepped up and helped us out. Heavenly Father sent us to such wonderful families and we are so blessed.

Quinn has always had a little tremor since birth, but it's been chalked up to a startle reflex. In the last week that's changed. She has had events where her arms extend and sometimes shake a little. This has progressed to arms and legs being extended and her head being tossed back. It's a very strange sight and has gotten a worse. It's been happening when she is in the swing, car seat or the bath, but is now at rest as well. We sent a video recording of it to our Dr. who sent it to her neurologist in Seattle.
These events are suspicious for what they call infantile spasms or west syndrome. We are going out to Seattle this week for an EEG and a consult to determine if these are infantile spasms. Hopefully we can determine if this is a serious problem. We are really looking to make her more comfortable, and these spasms are stressing both Quinn and us out. Lets all hope we can find a way to lessen their effect on her.

We have the best friends, family, ward and co-workers. Thank you all. We've had great meals, lots of kind emails and phone calls, and so much support.

 Thank you to both our work places who have been so understanding of us having to rearrange our work schedules and sometimes take time off at a moments notice.